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Updated: Aug 29, 2026

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
[Parents' perceptions of their infants' hospitalization in a neonatal intensive care unit]
Z C Lamy1, R Gomes, M de Carvalho
1Instituto Fernandes Figueira/FIOCRUZ.
Insights
Parents frequently experience fear and stress during infant hospitalization in a neonatal intensive care unit (NICU). Improving communication and understanding parental needs are crucial for providing humane, individualized care for high-risk newborns.
Area of Science:
- Neonatal intensive care unit (NICU) care
- Parental adaptation to infant hospitalization
- Healthcare communication
Context:
- Neonatal intensive care units (NICUs) are highly stressful environments for parents.
- Low socioeconomic status parents face unique challenges during infant hospitalization.
- First-time parents often struggle with the complexities of NICU care.
Purpose:
- To analyze parental perceptions of infant hospitalization in a NICU.
- To identify parental emotional responses and communication barriers.
- To propose strategies for more humane and individualized NICU care.
Summary:
- Parents reported significant fear, stress, and uncertainty during their infant's NICU stay.
- Healthcare professionals were often perceived as too busy, using complex medical jargon.
- Lack of clear, understandable communication exacerbated parental distress.
Impact:
- Findings highlight the need for improved communication and empathy in NICU settings.
- Understanding parental needs is essential for providing humanized care to high-risk infants and families.
- This study informs strategies to create a more supportive and less impersonal NICU experience.
Objective:
To analyze the parents' perception of their infants hospitalization in a neonatal intensive care unit (NICU) and suggest a more humane and individualized care in this highly stressful environment.
Methods:
We recorded and analyzed the interview of 20 young, low socioeconomic class couples having their first baby admitted to a NICU of a public hospital.
Results:
Fear, stress and doubts were frequent feelings among parents. Heath professionals were often too busy to explain in detail what was happening. When talking to parents, doctors and nurses usually used medical terminology which was poorly understood by parents.
Conclusion:
The environment of a NICU is perceived by parents as being cold, impersonal and highly stressful. Listening to and understanding parents' needs is mandatory if one wants to provide a more humane and individualized care for high risk newborn infants and their families.
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