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Deciding for neonates: whose authority, whose interests?
Rosalind Ekman Ladd1, Mark R Mercurio
1Program in Biomedical Ethics, Brown University, Providence, RI, USA.
Insights
Decision-making for critically ill newborns involves the patient's best interest and parental authority. This essay explores alternatives, considering the young mother's interests and shared decision-making models.
Area of Science:
- Medical Ethics
- Neonatal Care
- Pediatric Decision-Making
Background:
- Critically ill newborns present complex ethical challenges in decision-making.
- Established principles include the patient's best interest and parental surrogate authority.
- The unique context of adolescent mothers requires specific ethical considerations.
Purpose of the Study:
- To examine decision-making principles for critically ill newborns with adolescent mothers.
- To explore alternatives to the sole patient's best interest standard.
- To discuss shared decision-making models involving young mothers and adult relatives.
Main Methods:
- Ethical analysis of established decision-making principles.
- Exploration of alternative ethical frameworks.
- Discussion of shared decision-making models in a specific clinical context.
Main Results:
- The patient's best interest standard may not fully encompass all relevant considerations.
- Including the interests of young mothers and their families is crucial.
- Shared decision-making models can empower adolescent mothers and involve supportive adults.
Conclusions:
- Decision-making for critically ill newborns with adolescent mothers requires a nuanced approach.
- Alternative ethical frameworks beyond the patient's best interest are valuable.
- Shared decision-making models offer a promising avenue for ethical and practical infant care.
Abstract:
Two principles are commonly perceived as being central to decision-making for critically ill newborns: the patient's best interest standard, and the authority of the parents to speak for the newborn as the surrogate decision-makers. In this essay, these 2 principles are examined in the context of a particular setting, that of a critically ill newborn with a mother in early adolescence. Alternatives to the patient's best interest standard are explored, including consideration of other interests in addition to those of the patient, such as the interests of the young mother and other family members. Also, we discuss a model of shared decision-making, wherein "parental authority" may be shared between the young adolescent mother and an adult relative, such as her own mother.
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