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Published on: January 17, 2011
Tracheostomy and home ventilation in children
Raouf S Amin1, Cynthia M Fitton
1Pulmonary Medicine, Cincinnati Children's Hospital Medical Center, 3333 Burnet Avenue, Cincinnati, OH 45030, USA. raouf.amin@cchmc.org
Insights
Home mechanical ventilation for children with chronic respiratory failure has increased due to medical advances and parental expectations. This shift supports better quality of life and longer survival for ventilator-dependent children.
Area of Science:
- Pediatric Pulmonology
- Medical Technology
- Healthcare Policy
Background:
- Significant growth in home care for ventilator-dependent children over the past 30 years.
- Driven by cost reduction, medical advancements, and evolving perceptions of pediatric ventilator use.
- Increased survival rates and improved quality of life for children on long-term mechanical ventilation.
Purpose of the Study:
- To explore the trends and factors contributing to the rise of home mechanical ventilation in children.
- To define the primary indications and characteristics of chronic respiratory failure in pediatric patients.
- To highlight the role of multidisciplinary teams and parental expectations in this care model.
Main Methods:
- Review of medical literature and healthcare trends over the last three decades.
- Analysis of factors influencing the shift towards home-based ventilator care for children.
- Examination of the definition and diagnostic criteria for chronic respiratory failure (CRF).
Main Results:
- Home mechanical ventilation has become a prominent care model for ventilator-dependent children.
- Advancements in medical knowledge, technology, and nursing care have facilitated this transition.
- Parental expectations for long-term survival and improved quality of life are key drivers.
Conclusions:
- Home mechanical ventilation is increasingly utilized for pediatric chronic respiratory failure (CRF).
- CRF, defined by persistent hypoxemia/hypercapnia requiring ventilation for over a month, is the primary indication.
- The trend reflects successful integration of medical progress, supportive care, and family-centered expectations.
Abstract:
The last 30 years have brought a significant emphasis on home care for ventilator-dependent children. While the movement was driven by the desire to minimize healthcare costs, the advancements in medical knowledge and technology, and the change in the perception of a ventilator-dependent child have offered a fertile environment for the development of programs that support the chronic care of ventilator-dependent children at home (N. Engl. J. Med. 309(21) (1983) 1319; J. Pediatr. 106(5) (1985) 850; N. Engl. J. Med. 310(17) (1984) 1126; JAMA 258(23) (1987) 3398). In addition, the advances in medical and nursing care have led to the steady increase in the number of children with chronic respiratory failure and development of multi-disciplinary teams experienced and dedicated to the care of these children. Another trend that has also contributed to the rise in the number of pediatric patients using long-term mechanical ventilation is the parental expectation of long-term survival of their child. This parental expectation continues to grow as the effect of long-term mechanical ventilation on quality of life and longer survival becomes more evident. The primary indication for use of home mechanical ventilation is chronic respiratory failure (CRF) as indicated by hypoxemia and or hypercapnia. CRF is considered to be a condition persisting for greater than 1 month and requiring mechanical ventilation during part or all of the day to provide adequate gas exchange for the support of vital function (Chest 103(5) (1993) 1463).
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