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Shifting perspectives: adolescent-focused oncology nursing research
1Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN, USA. pam.hinds@stjude.org
Oncology Nursing Forum
|March 16, 2004
Summary
Adolescents with cancer have unique experiences not fully explained by current theories. The Shifting Perspectives Model of Chronic Illness offers a framework for better research and understanding of adolescent cancer patients.
Area of Science:
- Adolescent oncology research
- Chronic illness theoretical models
- Qualitative and quantitative research synthesis
Background:
- Adolescents with cancer face unique contextual experiences.
- Existing theories inadequately explain the experiences of adolescents with cancer.
- Research with this population requires tailored theoretical perspectives.
Purpose of the Study:
- Describe contextual features of adolescent cancer experiences in the U.S.
- Relate these features to the Shifting Perspectives Model of Chronic Illness.
- Derive implications for research with adolescents who have cancer.
Main Methods:
- Systematic review of 64 qualitative and quantitative studies.
- Inclusion of clinical anecdotes.
- Thematic synthesis of research findings.
Main Results:
- Adolescent cancer experiences are shaped by unique personal, disease, and treatment factors.
- Current adolescent theories fail to adequately guide or explain research findings.
- The Shifting Perspectives Model provides a more suitable framework.
Conclusions:
- The Shifting Perspectives Model of Chronic Illness is valuable for hypothesis generation in adolescent cancer research.
- This model can guide research design and method selection for studies involving adolescents with cancer.
- The model emphasizes the ethical responsibilities of researchers working with this population.