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A study of parental involvement in pediatric hospital care: implications for clinical practice
Britt Marie Ygge1, Judith E Arnetz
1Astrid Lindgren Children's Hospital, Karolinska Hospital, Stockholm, and Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden. britt-marie.ygge@ks.se
Insights
Parents
Area of Science:
- Pediatric Nursing
- Family-Centered Care
Background:
- Parental presence during hospitalization is common but often lacks structured support.
- Hospitals frequently lack clear guidelines for involving parents in care decisions.
Purpose of the Study:
- To explore factors influencing parental involvement in hospital care.
- To define the role of parents in caring for chronically ill children.
Main Methods:
- Conducted semistructured interviews with 14 parents.
- Focused on parents of chronically ill children with frequent hospital stays.
Main Results:
- Identified four key themes: support, professionalism, work environment, and responsibility.
- These themes reflect parents' experiences and perceptions of hospital care.
Conclusions:
- Clinical practices for parental involvement require development.
- Optimizing hospital care for chronically ill children necessitates established protocols for parent engagement.
Background:
Although it has become common practice for parents to stay with their sick child in hospital, most hospitals lack routines and staff guidelines for involving parents in care processes and decisions.
Aim:
To gain a deeper understanding of factors that influence parental involvement and to clarify the parental role in the hospital care of chronically ill children.
Methods:
Semistructured interviews with 14 parents of chronically ill children.
Results:
Four themes were identified: support, professionalism, work environment, and responsibility. These themes describe the experience and perceptions of parents who regularly spend time in the hospital with their children.
Conclusions:
Clinical practices regarding parental involvement need to be established to optimize the hospital care of chronically ill children.
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