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Computerized visualization of quality of life data of individual cancer patients--the QoL-Profiler
M Middeke1, A Bauhofer, I Kopp
1Marburg Interdisciplinary Tumour Centre, Philipps-University Marburg, Baldingerstrasse, 35033, Marburg, Germany. Middeke@med.uni-marburg.de
Objective:
Quality of life (QoL) is increasingly considered as an important endpoint in clinical studies but difficult to use in clinical practice. For daily clinical practice, we developed a computer program that is able to calculate and draw QoL profiles for individual cancer patients.
Methods:
The computer program was developed in several steps during the course of studies with different patient populations (prospective cohort study, randomised surgical trial, breast cancer patients, all tumour patients of a clinic) and using different software packages.
Results:
The current version is based on Microsoft ACCESS and combines QoL data and medical data. Automated QoL profile output comprises 10 scores that are of clinical relevance. Scores range from 0 (worst) to 100 (best), with 50 considered as the threshold for intervention.
Conclusions:
Practitioners found QoL-profiles comprehensible and clinically useful. QoL profiles are the crucial link between the QoL concept and QoL enhancing treatment decisions.
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