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Related Experiment Videos

A voice for the dying.

Mary Ann Meeker1, Mary Ann Jezewski

  • 1University at Buffalo, the State University of New York, USA.

Clinical Nursing Research
|September 28, 2004
PubMed
Summary
This summary is machine-generated.

Family surrogates making end-of-life decisions found the role demanding. Honoring patient wishes brought satisfaction, and advice from experienced surrogates can guide nurses in supporting these critical family roles.

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Area of Science:

  • Medical Sociology
  • End-of-Life Care
  • Qualitative Research

Background:

  • Family surrogate decision-making is a complex process during end-of-life care.
  • Understanding the needs of family surrogates is crucial for providing adequate support.
  • Previous research has explored surrogate decision-making, but less focus has been placed on their expressed needs and advice.

Purpose of the Study:

  • To describe family surrogates' perceptions of their needs.
  • To analyze advice given by experienced surrogates to others facing similar roles.
  • To identify how nurses can better support family surrogates.

Main Methods:

  • Secondary analysis of audiotaped narrative data from a grounded theory study.
  • Constant comparative method used for data analysis.

Related Experiment Videos

  • Focus on approximately 22 hours of data from individuals who served as family surrogates during a family member's terminal cancer phase.

    • Main Results:

    • The role of a family surrogate decision-maker was perceived as very demanding by all participants.
    • Participants experienced satisfaction when they could ensure another person's wishes were honored.
    • Key themes emerged regarding the needs of surrogates and recommendations for future surrogates.

    Conclusions:

    • Experienced surrogates offer valuable advice that can guide nurses in supporting surrogate decision-makers.
    • Nurses can utilize this insight to coach surrogates more effectively in fulfilling this critical role.
    • Addressing surrogate needs is essential for improving end-of-life care experiences.