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Related Experiment Videos

Psychosocial functioning in pediatric cancer.

Andrea Farkas Patenaude1, Mary Jo Kupst

  • 1Dana-Farber Cancer Institute, Children's Hospital, and Harvard Medical School, Boston, and Medical College of Wisconsin, Milwaukee, USA. andrea_patenaude@dfci.harvard.edu

Journal of Pediatric Psychology
|December 22, 2004
PubMed
Summary

Pediatric psycho-oncology has advanced, improving communication and distress interventions for childhood cancer patients. Research now focuses on long-term effects and identifying factors for better adjustment in survivors.

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Andrea Farkas Patenaude (1946-2018).

The American psychologist·2019

Area of Science:

  • Psycho-oncology
  • Childhood Cancer Research
  • Psychosocial Aspects of Cancer

Background:

  • The field of pediatric psycho-oncology has evolved significantly over the past three decades.
  • Early approaches often involved avoidance of open communication regarding cancer diagnosis and prognosis.

Purpose of the Study:

  • To delineate the development of pediatric psycho-oncology.
  • To synthesize existing research on the psychosocial dimensions of childhood cancer and survivorship.

Main Methods:

  • Literature review focusing on illness communication, informed consent, procedural pain, and late effects.
  • Examination of psychological distress, coping mechanisms, adjustment, and high-risk populations.
  • Discussion of methodological challenges and future research directions in pediatric psycho-oncology.

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Main Results:

  • Shift from communication avoidance to open discussion of diagnosis and prognosis.
  • Development of behavioral interventions to mitigate procedural distress.
  • Identification of social functioning impacts from late effects of cancer treatment.
  • While most pediatric cancer survivors exhibit typical distress levels, vulnerable subgroups and their families require targeted support.
  • Key factors influencing positive and negative coping strategies have been identified.

Conclusions:

  • Increasing numbers of pediatric cancer survivors enable longitudinal studies on adjustment and its predictors.
  • Future research will explore the impact of novel medical treatments and interventions for late effects.
  • Enhanced funding, improved research methodologies, and multi-institutional collaboration are crucial for advancing pediatric psycho-oncology research.