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Developing and evaluating the GriefLink web site: processes, protocols, dilemmas and lessons learned.

Sheila Clark¹, Teresa Burgess, Gillian Laven

¹Department of General Practice, The University of Adelaide, South Australia, Australia. sheila.clark@adelaide.edu.au

|February 24, 2005

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This study addresses the lack of guidance for designing and evaluating online grief support resources. It presents findings from developing GriefLink, a website for bereaved individuals and professionals, offering design recommendations and lessons learned.

Area of Science:

Digital Health
Bereavement Support
Human-Computer Interaction

Background:

Existing guidelines for health websites often overlook the unique needs of grief and loss resources.
There is a significant gap in practical advice for creating and assessing online platforms for bereaved individuals and their support networks.

Purpose of the Study:

To address the deficiency in guidance for designing and evaluating grief-related websites.
To present the process, recommendations, and lessons learned from developing and evaluating the GriefLink website.

Main Methods:

Community consultation process involving design and evaluation of a grief-related website (GriefLink).
Literature review to inform project development.
Discussion of ethical and legal dilemmas encountered during development.

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Main Results:

Development of GriefLink, a web resource for bereaved consumers and professionals.
Identification of key recommendations for design and content of grief-related websites.
Recognition of challenges in evaluating the benefits of such online resources.

Conclusions:

The development of GriefLink provides a model and practical insights for creating effective online grief support.
Specific recommendations for design, content, and evaluation are crucial for grief-related web resources.
Further research is needed to effectively evaluate the impact and benefits of digital grief support tools.