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World apheresis association--world apheresis registry
B G Stegmayr1, P Ivanovich, J M Korach
1Medicinkliniken Norrlands Universitetssjukhus, 901 85 Umea, Sweden. bernd.stegmayr@medicin.umu.se
Summary
The World Apheresis Registry (WAA) was established in 2002 to track apheresis treatments and adverse events globally. It aims to connect centers and facilitate research, inviting participation from all apheresis facilities worldwide.
Area of Science:
- Hematology
- Medical Informatics
- Clinical Research
Background:
- The World Apheresis Association (WAA) identified a need for a global registry in 2002.
- Existing registries (French, Canadian, Swedish) were considered for integration.
- The WAA aimed to gather data on apheresis treatment extent and adverse events.
Purpose of the Study:
- To establish a worldwide apheresis registry.
- To gain insights into treatment scope and adverse events.
- To facilitate collaboration among centers with rare indications and limited experience.
Main Methods:
- A merged version of French, Canadian, and Swedish registries was proposed for implementation starting December 2002.
- Centers were invited to join the registry and contribute data.
- The registry includes a randomization system for local or multi-center studies.
Main Results:
- The registry was planned for immediate implementation in December 2002.
- Participation was encouraged through direct invitations and requests for contact information.
- No registration fee was charged to participating centers.
Conclusions:
- The World Apheresis Registry provides a platform for data collection and research collaboration.
- It aims to improve understanding of apheresis treatments and patient safety.
- The integrated registry facilitates research by offering randomization tools for various study designs.