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A centralised public information resource for randomised trials: a scoping study to explore desirability and
Anne L Langston1, Marion K Campbell, Vikki A Entwistle
1University of Aberdeen, Aberdeen, UK. a.langston@abdn.ac.uk
BMC Health Services Research
|May 26, 2005
Summary
A centralized information resource for clinical trials is needed to address recruitment and participation concerns. This resource, accessible online, could improve trial engagement for patients and researchers.
Area of Science:
- Clinical Trials Research
- Patient Engagement Strategies
- Health Information Dissemination
Background:
- Concerns exist regarding recruitment methods, low acceptance rates, and participant experiences in randomized controlled trials.
- An accessible information resource for clinical trials could mitigate these issues.
Purpose of the Study:
- To explore the feasibility and desirability of creating a centralized information resource for clinical trial participants.
- To gather input from diverse stakeholders, including potential participants, current participants, and researchers.
Main Methods:
- A scoping exercise was conducted to assess the need and practicality of an information resource.
- Stakeholder views were collected from individuals considering trial participation, current participants, those who declined participation, consumer representatives, and trial researchers.
Main Results:
- Broad support was found for a centralized information resource on ongoing and completed clinical trials.
- The resource could feature a database with standardized trial information (purpose, interventions, implications, quality indicators).
- Enhanced search functionality (disease, geography) and flexible display formats are desirable, with internet access preferred.
Conclusions:
- A centralized, participant-focused clinical trial information resource has potential benefits.
- Further investigation into feasibility and impact assessment is warranted.