Related Experiment Video

Updated: Aug 16, 2026

Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure
07:56

Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure

Published on: September 19, 2019

The parent's perspective

Teresa Culverwell1

  • 111 Brookfield Way, Kings Court, Tipton, West Midlands, UK. teresa_culverwell@yahoo.co.uk

The Proceedings of the Nutrition Society
|July 29, 2005
PubMed

Insights

Managing a child with complex needs, including enteral feeding, requires a collaborative approach. Parents and health professionals must share knowledge and communicate effectively to reduce stress and optimize care resources.

Area of Science:

  • Pediatrics
  • Healthcare Management
  • Family-Centered Care

Background:

  • Children with complex needs often require specialized medical care, including enteral feeding.
  • Effective management necessitates collaboration among parents, healthcare professionals, and service providers.

Purpose of the Study:

  • To provide a parent's perspective on managing a child with complex needs and enteral feeding.
  • To highlight the importance of a multi-agency, child-centered approach in daily care.
  • To identify areas for improved support and communication.

Main Methods:

  • Case study of a 9-year-old boy with complex needs requiring enteral feeding.
  • Analysis of the parent's experience with healthcare professionals and service providers.
  • Qualitative insights into diagnosis, treatment, and support systems.

Main Results:

  • A multi-agency approach is crucial, with parents as active participants.
  • Valuing interdisciplinary professional opinions and shared knowledge is essential.
  • Conflicting advice from professionals should be avoided through better communication.

Conclusions:

  • Enhanced communication and collaboration between parents, carers, and professionals reduce stress.
  • Standardized training for carers and national accessibility to support services are needed.
  • A coordinated, child-focused strategy optimizes resource utilization and improves patient/carer well-being.

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