Patients' perspective of pathology specimens. A prospective study

Area of Science:

• Surgical Pathology
• Patient Engagement
• Medical Education

Background:

• Understanding patient interest in surgical pathology specimens is crucial for improving communication and trust.
• The role of patient involvement in pathology specimen management and research consent requires further investigation.

Purpose of the Study:

• To quantify patient interest in viewing their surgical pathology specimens.
• To evaluate the impact of direct patient involvement in surgical pathology on understanding specimen handling and research use.

Main Methods:

• A cohort of 47 patients was invited to a pathology department post-surgery to view their specimens.
• A questionnaire was administered to visiting patients to assess the effects of their specimen viewing experience.

Main Results:

• A significant majority (33/47) expressed a desire to view specimens, though only 14 completed the visit.
• All patients who viewed their specimens reported improved understanding of surgical rationale and tissue retention.
• Viewing specimens increased patient likelihood to consent to the use of excess tissue for research purposes.

Conclusions:

• Patients demonstrate a strong interest in understanding the fate and findings of surgically removed organs.
• Patient engagement in surgical pathology yields positive outcomes, enhancing patient comprehension and facilitating research participation.
• Involving patients in surgical pathology benefits both patient understanding and the advancement of the pathology profession.