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Self-determination: analysis of the concept and implications for research in palliative care
1Darmouth Medical School, Dartmouth-Hitchcock Medical Center, Section of Palliative Medicine, Lebanon, New Hampshire 03756, USA. marie.bakitas@dartmouth.edu
Abstract:
This paper analyzes the evolution and the definition, current use, and application of the concept of self-determination in palliative care research and practice. Undertaken as a foundation for the development of a palliative care research program, the analysis considers selected historical, bioethical, legal, clinical, and relevant medical and nursing health-care literature on adults with chronic and terminal illness. Based on a synthesis of the literature, a conceptual definition is proposed and ways of integrating the concept of self-determination into palliative care intervention research are identified.
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