Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

Pediatric advance care planning.

Bernard J Hammes1, Judy Klevan, Michelle Kempf

  • 1Department of Medical Humanities, Gundersen Lutheran Medical Foundation, 1900 South Avenue, La Crosse, WI 54601-5494, USA. bjhammes@gundluth.org

Journal of Palliative Medicine
|September 1, 2005
PubMed
Summary
This summary is machine-generated.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Cardiologists' perspectives on sociocultural and structural factors shaping cardiovascular genetic testing.

medRxiv : the preprint server for health sciences·2026
Same author

COMPREHENSIVE GENETIC INVESTIGATION REVEALS HETEROGENEOUS PATHWAYS TO OBSTRUCTIVE SLEEP APNEA.

medRxiv : the preprint server for health sciences·2026
Same author

Assessing the views and opinions of psychiatric patients receiving genome-guided treatment within the scope of the PREPARE preemptive pharmacogenomics clinical study.

Frontiers in pharmacology·2025
Same author

Genomic medicine year in review: 2025.

American journal of human genetics·2025
Same author

Leveraging genomic biobanks to enhance genetic testing outcomes for kidney disease.

medRxiv : the preprint server for health sciences·2025
Same author

Performance of recommended management among pediatric patients identified through genomic screening.

Translational behavioral medicine·2025

Pediatric advance care planning helped most families ensure their child received the best care, improving quality of life and reducing suffering. This process supported families through difficult end-of-life decisions.

Area of Science:

  • Pediatric Palliative Care
  • Medical Ethics
  • Family-Centered Care

Background:

  • Pediatric advance care planning (ACP) is crucial for children with progressive disorders.
  • Understanding the process, population, and outcomes of ACP in pediatrics is essential.

Purpose of the Study:

  • To describe the process and population involved in pediatric advance care planning.
  • To discuss the outcomes and parental perceptions of ACP for children.

Main Methods:

  • Retrospective review of ethics consultations for pediatric patients with advance directives.
  • Analysis of medical records for patient conditions and care received.
  • Qualitative interviews with parents to explore their experiences with ACP.

Related Experiment Videos

Main Results:

  • Seventeen children with progressive, non-cancerous disorders were included.
  • Advance directives were followed in most cases (8/9).
  • Thirteen parents reported ACP benefited their child and family, enhancing quality of life and avoiding suffering.

Conclusions:

  • Pediatric advance care planning is beneficial for families, ensuring quality of life and minimizing suffering.
  • Despite the difficulty of discussing end-of-life issues, parents found ACP helpful.
  • Community concerns regarding advance directives were rarely raised.