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The initiative for pediatric palliative care: an interdisciplinary educational approach for healthcare professionals
David M Browning1, Mildred Z Solomon,
1Education Development Center, Inc., Newton, MA 02458, USA.
Insights
Pediatric palliative care education is enhanced by a new, comprehensive approach. This family-centered model addresses the needs of children with life-threatening conditions and their families.
Area of Science:
- Healthcare delivery
- Pediatric medicine
- Medical education
Background:
- US healthcare system inadequately addresses needs of children with life-threatening conditions.
- Pediatric palliative care requires improved clinical practice and institutional support.
- Recent developments present an opportunity to advance pediatric palliative care.
Purpose of the Study:
- To present an innovative, comprehensive pediatric palliative care education approach.
- To address the needs of clinicians and parents caring for children with life-threatening conditions.
- To promote culturally respectful, family-centered care.
Main Methods:
- Developed by a consortium of academic children's hospitals and professional organizations.
- Based on needs assessment research involving clinicians and parents.
- Combines adult education principles with family involvement and integrated learning.
Main Results:
- An innovative educational framework for pediatric palliative care.
- A model emphasizing family-centered and culturally respectful care.
- Integration of affective and cognitive learning dimensions for enhanced outcomes.
Conclusions:
- The developed approach offers a comprehensive strategy for pediatric palliative care education.
- This model is designed to improve care for children with life-threatening conditions and their families.
- The approach highlights the importance of family-centered and culturally sensitive care in pediatric palliative care settings.
Abstract:
There is growing empirical evidence that the U.S. healthcare system fails to meet the needs of children with life-threatening conditions and their families. The confluence of several recent developments has created a critical window of opportunity for improving clinical practice and institutional effectiveness in pediatric palliative care. This article presents an innovative, comprehensive approach to pediatric palliative care education that was developed by the Initiative for Pediatric Palliative Care, a consortium of seven academic children's hospitals, Education Development Center, the National Association of Children's Hospitals and Related Institutions, the New York Academy of Medicine, the Society of Pediatric Nursing, and the Association of Medical School Pediatric Department Chairs. The approach is based on needs assessment research with clinicians and parents and reflects a commitment to culturally respectful, family-centered care of children with life-threatening conditions. The pedagogy combines principles of adult education, includes families as teachers, and integrates affective and cognitive dimensions to enhance learning.
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