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Related Experiment Videos

Using the Patient Generated Index to evaluate response shift post-stroke.

Sara Ahmed1, Nancy E Mayo, Sharon Wood-Dauphinee

  • 1Clinical and Health Informatics, Faculty of Medicine, McGill University, Montreal, Quebec, Canada.

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
|December 6, 2005
PubMed
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Individualized health-related quality of life (HRQL) measures show significant changes in stroke survivors within six months. However, using these patient-generated tools presents feasibility challenges in early recovery.

Area of Science:

  • Neuroscience
  • Rehabilitation Medicine
  • Psychometrics

Background:

  • Individualized measures assess health-related quality of life (HRQL) based on personal relevance.
  • These measures are valuable for evaluating response shift, which involves reconceptualization of HRQL and changes in personal values.

Purpose of the Study:

  • To assess reconceptualization of HRQL and changes in individual values among stroke survivors.
  • To investigate these changes during the initial six months of recovery post-stroke.

Main Methods:

  • Data collected within a randomized trial of acute post-stroke care.
  • Individualized HRQL evaluated using the Patient Generated Index (PGI) at 6 and 24 weeks post-stroke.
  • Semi-structured interviews at 24 weeks assessed for response shift indicators.

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Main Results:

  • 48% of subjects had completely different HRQL domains selected at 24 weeks compared to 6 weeks.
  • 28% of stroke survivors experienced a response shift, confirmed by interviews.
  • Significant changes in conceptualization of HRQL and values were observed.

Conclusions:

  • The Patient Generated Index (PGI) offers valuable insights into evolving HRQL and values post-stroke.
  • Feasibility of using individualized measures in the first six months post-stroke is limited by complexity.
  • Further research needed to optimize the use of PGI in stroke recovery.