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A framework for ethical decision making in neonatal intensive care
Ruth Baumann-Hölzle1, Marco Maffezzoni, Hans Ulrich Bucher
1Dialogue Ethics, Zurich, Switzerland.
Insights
A structured decision-making framework for neonatal intensive care units (NICUs) improved teamwork and reduced prolonged suffering for critically ill infants and their families. This approach shortens futile intensive care, prioritizing infant well-being.
Area of Science:
- Neonatal Medicine
- Medical Ethics
- Healthcare Management
Background:
- Neonatal intensive care units (NICUs) frequently face ethical challenges regarding high-risk neonates with potential for severe impairment and prolonged dying.
- Decision-making in these cases requires balancing infant and parental interests with advanced medical interventions.
Purpose of the Study:
- To present a framework for structured decision-making in NICUs.
- To evaluate the framework's impact on healthcare teams and critically ill neonates' survival.
Main Methods:
- Development of a decision-making framework integrating infant/parent interests, high-tech interventions, and clinical perspectives.
- External evaluation of 84 decision-making sessions over 3 years.
- Comparison of survival times between neonates managed with the framework and matched controls.
Main Results:
- The framework positively impacted the quality of the decision-making process and teamwork within the NICU.
- Neonates who died after structured decision-making had a shorter survival time (median 2 days) compared to controls (median 7 days).
Conclusions:
- Implementing a structured decision-making framework involving doctors and nurses enhances teamwork quality.
- The framework effectively reduced futile intensive care, thereby alleviating suffering for infants and parents.
Unlabelled:
Intensive care for neonates with high risks of severe impairment and the possibility of a prolonged dying process represents a frequent ethical issue in neonatal units. The aim of this paper is to present a framework for structured decision making that has been developed in a neonatal intensive care unit and to demonstrate its impact on the healthcare team and on survival of critically ill neonates. This framework attempts to integrate the best interests of the infants and their parents, the possibilities of high-tech neonatal intensive care interventions, and the perspective of the nurses and doctors. An external evaluation of 84 sessions over 3 y revealed a beneficial effect on the quality of the decision-making process itself and on the quality of the teamwork in the unit. Survival time was shorter (median 2 d, interquartile range 1-7 d) in 26 infants that died after structured decision making compared with 26 controls matched for gestational age, malformation and intracranial haemorrhage (median 7 d, interquartile range 4-15 d).
Conclusion:
The introduction of this framework for structured decision making involving doctors and nurses improved the quality of the teamwork. It shortened futile intensive care, and thereby suffering for both infants and parents.
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