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Practical challenges of conducting research into rheumatic fever in remote Aboriginal communities
Malcolm I McDonald1, Norma Benger, Alex Brown
1Menzies School of Health Research, Charles Darwin University, Darwin, NT, Australia.
Abstract:
Before embarking on an epidemiological study of acute rheumatic fever in remote Aboriginal communities, researchers engaged in the processes of community consultation, consent and household enrollment. Community expectations and time constraints are not necessarily those of the funding bodies, and a considerable investment of time and local engagement was required before the project proceeded with local support. The remoteness of the communities, harsh climate and limited infrastructure made working conditions difficult. Nevertheless, the study was completed and the results are being returned to the local councils and households. The research team continues to maintain its relationship with each study community.
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Etiology
Three primary contributing factors have been identified.