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Published on: January 12, 2019
A method to measure reaching capacity of children with neuromuscular disorders
Gayle A Wiens1, Kenneth P Pitetti
1Rainbows United, Inc.
Insights
A new PVC frame and protocol standardize upper-extremity reaching measurements for children with neuromuscular disorders. This objective assessment improves evaluation of functional reach, aiding clinical practice.
Area of Science:
- Pediatric physical therapy
- Neuromuscular disorders
- Rehabilitation engineering
Background:
- Quantitative assessment of upper-extremity skills in children is challenging due to subjective reaching task definitions.
- Lack of objective, standardized measures limits accurate tracking of functional changes.
Purpose of the Study:
- To develop and validate an objective measurement system for upper-extremity functional reach in children with neuromuscular disorders.
- To establish a standardized protocol for assessing vertical, horizontal, and cross-midline reach parameters.
Main Methods:
- Construction of a PVC tubing frame to standardize reach measurements.
- Implementation of a defined protocol for obtaining reach measures.
- Focus on children with neuromuscular disorders.
Main Results:
- The developed frame and protocol provide objective, standardized measures of functional reach.
- The system allows for quantifiable assessment of vertical, horizontal, and cross-midline reach.
- Initial findings support the utility of the system in clinical settings.
Conclusions:
- The PVC frame and protocol offer a reliable method for measuring functional reach in pediatric populations.
- Further research is recommended to determine optimal session numbers for capturing a child's maximal reaching effort.
- Consistency in measurement is crucial for accurate evaluation and intervention planning.
Problem:
The measurement of quantitative changes in upper-extremity skills has been limited by the lack of objective standardized measures and, therefore, reaching tasks have been subjectively defined.
Solution:
A frame made from PVC tubing was constructed to assist in measuring the parameters of vertical, horizontal, and cross midline functional reach of children with neuromuscular disorders, and a measurement protocol was adopted for obtaining the measures of reach.
Recommendations For Clinical Practice:
Suggestions for assuring consistency in measurements and further exploration of the number of sessions required to determine a child's best reaching effort are put forth.

