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Updated: Jul 4, 2026

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
Published on: January 12, 2019
Selina Limmen1, Dorinde L Korteling, Manon A T Bloemen
1Department of Child and Adolescent Psychiatry & Psychosocial Care, Amsterdam UMC, University of Amsterdam, Emma Children's Hospital, Amsterdam, The Netherlands (Limmen, Korteling, Luijten, van Oers, and Haverman); Child Development, Amsterdam Reproduction and Development, Amsterdam, The Netherlands (Limmen, Korteling, Luijten, van Oers, and Haverman); Mental Health, Amsterdam Public Health, Amsterdam (Limmen, Korteling, Luijten, van Oers, and Haverman); Personalized Medicine, Amsterdam Public Health, Amsterdam (Limmen); Methodology, Amsterdam Public Health, Amsterdam (Korteling, Luijten); Research Group Moving, Growing, and Thriving Together, HU University of Applied Sciences Utrecht, Utrecht, The Netherlands (Bloemen); Department of Epidemiology and Data Science, Amsterdam UMC, Vrije Universiteit, Amsterdam, The Netherlands (Luijten); Department of Rehabilitation Medicine, Amsterdam Movement Sciences, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands (Engelbert); Centre of Expertise Urban Vitality, Faculty of Health, Amsterdam University of Applied Sciences, Amsterdam, The Netherlands (Engelbert); CAPHRI, Maastricht University, Maastricht, The Netherlands (Rameckers); Center of Expertise, Adelante Rehabilitation, Valkenburg, The Netherlands (Rameckers); Rehabilitation Science and Physiotherapy, REVAL, Hasselt University, Hasselt, Belgium (Rameckers); Amsterdam Public Health, Quality of Care, Amsterdam, The Netherlands (van Oers); Digital Health, Amsterdam Public Health, Amsterdam, The Netherlands (Haverman); UMC Utrecht Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands (Ketelaar); and De Hoogstraat Rehabilitation, Center of Excellence for Rehabilitation Medicine Utrecht, Utrecht, The Netherlands (Ketelaar).
A core set of patient-reported outcomes (PROs) and measures (PROMs) was developed for pediatric physical therapy. This standardized approach aids daily practice, research, and quality assessment in pediatric rehabilitation.
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