Partnerships in specialty care: exploring rural haemophilia provider resource needs
Andrea M Pritchard1, Marlene Reimer, Kari Simonson
1Faculty of Nursing, University of Calgary, Calgary, Alberta, Canada. apritchard@mtroyal.ca
Objective:
The purpose of this study was to determine whether rural providers have adequate preparation for safe and effective haemophilia care.
Design:
This qualitative study proceeded in two phases: focus group (phase I) and telephone (phase II) interviews.
Setting:
Five Canadian rural hospitals served by one urban haemophilia treatment centre and providing service to at least one haemophilia family.
Participants:
Phase I: focus groups of rural health professionals (site 1: n = 5; site 2: n = 6), including nursing, medicine and lab technology. Phase II: telephone interviews with nine participants from nursing, medicine, lab technology, social work and physiotherapy across three sites.
Main Outcome Measures:
Qualitative content analysis yielded categorical themes for specialty care resource requirements in a rural context.
Results:
Resource needs reflected five main categories: communication network, subjective knowledge, team roles, objective knowledge and partnerships (C-STOP).
Conclusions:
The five C-STOP categories require resources and alignment of urban specialist, rural provider and family expertise. Specialty clinic efforts promoting self-care are incomplete without matched resources for rural providers.
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