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Related Concept Videos

Continuing Care01:25

Continuing Care

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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
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Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
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Nursing involves independent, cooperative, person-centered care for people of all ages, families, groups, and communities. Nurses assist the sick or the well person in all settings. Nursing includes promoting health, preventing illness, and caring for ill, disabled, and dying people. Health promotion encourages people to take responsibility for their health. It focuses on the healthy behavior of individuals, families, and the community and the factors that impact their health. Examples of...
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Specialized care provided over an extended period is called tertiary care. Usually, a primary or secondary care physician will refer a patient to tertiary care. A patient's maximum physical and mental function is restored in tertiary care, which is caused due to the impact of a chronic illness or condition. Tertiary care aims to achieve the highest level of functioning possible while managing chronic illness. For example, a patient who falls and fractures their hip will need secondary care...
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Restorative care is provided once a patient has been discharged from a healthcare facility and requires additional services. The additional services include home care, rehabilitation programs, and extended care. Restorative care centers help the patient regain their previous level of functioning or acquire a new level of functioning due to the incapacitating effects of a disease or a disability. It aims to assist patients in enhancing their quality of life by encouraging independence,...
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A Quantitative Sensory Testing Paradigm to Obtain Measures of Pain Processing in Patients Undergoing Breast Cancer Surgery
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Perceptions of the term palliative care.

Ann Morstad Boldt1, Fouza Yusuf, Bruce P Himelstein

  • 1Department of Pediatrics, Medical College of Wisconsin, Milwaukee, 53226, USA. aboldt@chw.org

Journal of Palliative Medicine
|October 17, 2006
PubMed
Summary

Understanding pediatric palliative care (PPC) is key. Explaining PPC programs clearly to families and providers improves perceptions and increases use of these vital services.

Area of Science:

  • Pediatric healthcare
  • Palliative care
  • Health communication

Background:

  • Pediatric palliative care (PPC) programs aim to improve quality of life for children with serious illnesses.
  • Program name and description can influence perceptions and utilization.

Purpose of the Study:

  • To assess how parents and healthcare providers perceive a pediatric palliative care program based on its name and description.

Main Methods:

  • A survey was conducted at three pediatric healthcare sites.
  • Respondents (parents and staff) evaluated program likelihood to use, understanding, and feelings before and after reading descriptions for 'palliative care' vs. 'supportive care'.

Main Results:

  • Initially, parents were more likely to use a 'supportive care' program. After reading the description, this difference vanished.

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  • The name 'palliative care' evoked more negative emotions in parents, but the description improved feelings.
  • For staff, reading the description increased likelihood to use the 'palliative care' program; however, staff preferred the 'supportive care' name.

    • Conclusions:

    • Clearer definitions and explanations of PPC services are crucial for improving perceptions.
    • Enhanced communication can increase program utilization among families and healthcare providers.