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How do parents perceive their adolescent's diabetes: a qualitative study
Aaron E Carroll1, David G Marrero
1Children's Health Services Research, Indiana University School of Medicine, Indianapolis, IN, USA. aaecarro@iupui.edu
Diabetic Medicine : a Journal of the British Diabetic Association
|October 24, 2006
Summary
Parents perceive Type 1 diabetes challenges in adolescents impacting lifestyle and relationships. This study explored parental views on how diabetes affects their child
Area of Science:
- Pediatric Endocrinology
- Adolescent Health
- Psychosocial Aspects of Chronic Illness
Background:
- Adolescence presents unique developmental tasks that can complicate diabetes self-management.
- Parental perspectives on supporting adolescents with Type 1 diabetes are not well understood.
- Understanding these parental views is crucial for effective diabetes care interventions.
Purpose of the Study:
- To explore parental perceptions of how living with an adolescent with Type 1 diabetes influences their child's well-being.
- To examine how parental views are shaped by their child's relationship dynamics, peer interactions, and school environment.
- To identify challenges parents face in supporting adolescent diabetes self-management.
Main Methods:
- Qualitative study involving focus groups with 28 parents of adolescents (13-18 years) with Type 1 diabetes.
- Analysis of focus group transcripts using qualitative methods to identify dominant themes.
- Exploration of parental experiences and perceptions regarding adolescent diabetes management.
Main Results:
- Parents reported that diabetes negatively impacts adolescent lifestyle and complicates understanding developmental challenges.
- Concerns were raised about potential long-term diabetes complications.
- Parental perceptions highlighted the influence of diabetes on parent-child relationships, peer interactions, and school experiences impacting self-management.
Conclusions:
- This study offers insights into parental perceptions of adolescents with Type 1 diabetes.
- Key areas of parental concern include lifestyle, relationships (parent-child, peers), and school's role in diabetes self-management.
- Findings underscore the importance of considering parental perspectives in comprehensive adolescent diabetes care.
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