[EbM and patient perspective--a 5-step approach]

Area of Science:

• Pulmonary Medicine
• Health Communication
• Patient Education

Context:

• Shared decision-making is crucial for patient management but challenging to implement.
• Effective communication requires patient-centered information, like guidelines.
• Developing evidence-based asthma patient guidelines necessitates integrating patient needs.

Purpose:

• To develop an evidence-based asthma patient guideline that incorporates patient perspectives alongside medical recommendations.
• To identify patient needs and knowledge gaps regarding asthma self-management.
• To enhance patient engagement and autonomy in managing their condition.

Summary:

• A study developed an asthma patient guideline by including patient questionnaires and review panel participation.
• Patients prioritized information on self-care and asthma attack prevention over technical details like peak flow measurement.
• Patients also highlighted the need for information on pollution, alternative therapies, and cortisone use during attacks.

Impact:

• Patient perspectives revealed a gap between medical priorities and patient-reported needs for asthma management.
• Incorporating patient views led to a guideline more focused on daily challenges and individual needs.
• This approach enhances the implementability and relevance of evidence-based patient guidelines.