The cognitive and academic impact of sickle cell disease

Sara Day1, Elisabeth Chismark

  • 1International Outreach Program, St. Jude Children's Research Hospital, Memphis, TN, USA.

Insights

Sickle cell disease (SCD) impacts many students academically due to central nervous system issues. School nurses are vital in advocating for these students and bridging communication gaps.

Area of Science:

  • Pediatric Health
  • Neuroscience
  • Educational Psychology

Background:

  • Sickle cell disease (SCD) affects over 30,000 US students.
  • Central nervous system (CNS) complications like stroke and cognitive impairment are common in SCD.
  • These complications significantly impact academic performance and future opportunities.

Purpose of the Study:

  • To review the academic and cognitive effects of SCD in students.
  • To highlight the limited existing interventions for SCD-related academic challenges.
  • To define the crucial role of school nurses in advocating for affected students.

Main Methods:

  • Literature review of landmark and recent studies on SCD's cognitive and academic impact.
  • Analysis of the role of school nurses in managing student health and educational needs.
  • Discussion of awareness and resource allocation challenges in schools.

Main Results:

  • SCD-related CNS complications frequently lead to academic failure and disability.
  • There is a notable scarcity of reported interventions for academic support in SCD.
  • Educator awareness and school resource allocation for SCD are insufficient.

Conclusions:

  • School nurses are essential liaisons between healthcare providers, families, students, and educators.
  • Proactive advocacy and education by school nurses can mitigate academic risks for students with SCD.
  • Addressing the educational needs of students with SCD requires increased awareness and resources.

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