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Published on: November 5, 2019
The cognitive and academic impact of sickle cell disease
1International Outreach Program, St. Jude Children's Research Hospital, Memphis, TN, USA.
Insights
Sickle cell disease (SCD) impacts many students academically due to central nervous system issues. School nurses are vital in advocating for these students and bridging communication gaps.
Area of Science:
- Pediatric Health
- Neuroscience
- Educational Psychology
Background:
- Sickle cell disease (SCD) affects over 30,000 US students.
- Central nervous system (CNS) complications like stroke and cognitive impairment are common in SCD.
- These complications significantly impact academic performance and future opportunities.
Purpose of the Study:
- To review the academic and cognitive effects of SCD in students.
- To highlight the limited existing interventions for SCD-related academic challenges.
- To define the crucial role of school nurses in advocating for affected students.
Main Methods:
- Literature review of landmark and recent studies on SCD's cognitive and academic impact.
- Analysis of the role of school nurses in managing student health and educational needs.
- Discussion of awareness and resource allocation challenges in schools.
Main Results:
- SCD-related CNS complications frequently lead to academic failure and disability.
- There is a notable scarcity of reported interventions for academic support in SCD.
- Educator awareness and school resource allocation for SCD are insufficient.
Conclusions:
- School nurses are essential liaisons between healthcare providers, families, students, and educators.
- Proactive advocacy and education by school nurses can mitigate academic risks for students with SCD.
- Addressing the educational needs of students with SCD requires increased awareness and resources.
Abstract:
Sickle cell disease (SCD) affects over 30,000 students in the United States. Central nervous system complications are widespread among students with SCD and include stroke, silent cerebral infarction, and cognitive impairment. The effects of these complications may lead to academic failure, limited career options, and for some, total disability. Despite studies describing the significant academic and cognitive impact of sickle cell disease, reports describing interventions are limited. There is a lack of awareness among educators of the academic risks associated with sickle cell disease and a lack of appropriate resource allocation. The school nurse, as community health advocate, will be called upon to bridge the gap among healthcare providers, parents, students, and educators. This article provides a review of both recent and landmark studies describing the cognitive and academic impact of sickle cell disease and discusses the role of the school nurse as an advocate, liaison, and educator.
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