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Satisfaction with communicative participation as defined by adults with multiple sclerosis: a qualitative study
Kathryn M Yorkston1, Carolyn R Baylor, Estelle R Klasner
1Department of Rehabilitation Medicine, University of Washington, Box 356490, Seattle, WA 98195-6490, USA. yorkston@u.washington.edu
Journal of Communication Disorders
|November 28, 2006
Summary
Adults with multiple sclerosis (MS) find satisfaction in communication through comfort, successful outcomes, and personal meaning. Their subjective experiences highlight key aspects beyond mere activity frequency.
Area of Science:
- Neurology
- Speech and Language Pathology
- Qualitative Research
Background:
- Multiple Sclerosis (MS) significantly impacts daily life, including communication.
- Understanding patient-reported outcomes is crucial for effective MS management.
- Communicative participation is a key aspect of quality of life for individuals with MS.
Purpose of the Study:
- To explore and define satisfaction with communicative participation in adults with MS.
- To identify the core components contributing to communicative satisfaction from the patient's perspective.
- To inform the development of relevant outcome measures for MS interventions.
Main Methods:
- Qualitative descriptive study utilizing semi-structured interviews.
- Eight community-dwelling adults with MS participated.
- Constant comparative method for thematic analysis of interview data.
Main Results:
- Key themes emerged: Comfort (Ease, Confidence), Success of Outcome (Function Achieved, Connection Made), and Personal Meaning (Preferences, Past Comparisons, Self-Reflection).
- Satisfaction is multifaceted, encompassing emotional and personal significance.
- Frequency of communication activities was not a primary driver of satisfaction.
Conclusions:
- Communicative participation satisfaction in MS is complex and subjective.
- Findings suggest existing measures may not capture all relevant dimensions of satisfaction.
- Emphasizing patient-reported outcomes is vital for treatment evaluation and intervention targeting in MS.
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