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Developing an educational programme in paediatric palliative care
Jayne Price1, Patricia McNeilly
1School of Nursing and Midwifery, Queen's University Belfast, Medical Biology Centre, 97 Lisburn Road, Belfast BT9 7BL, UK. j.price@qub.ac.uk
Insights
Paediatric palliative care offers holistic support for children and families facing serious illness, addressing physical, emotional, and spiritual needs. This article details the development of Ireland
Area of Science:
- Medical Education
- Palliative Care
- Child Health
Background:
- Paediatric palliative care is a specialized, holistic approach focusing on symptom management and the psychosocial/spiritual needs of children and families.
- Children needing palliative care often have prolonged, unpredictable illness trajectories, causing significant stress for all involved.
- The unique nature of paediatric palliative care necessitates careful planning for educational programs.
Purpose of the Study:
- To describe the development process of the first dedicated paediatric palliative care educational program in Ireland.
- To illustrate the application of Peyton's curricular cycle in designing specialized healthcare education.
Main Methods:
- Utilized Peyton's curricular cycle as a framework for program development.
- Focused on the specific needs of children and families as central to the curriculum design.
Main Results:
- Successfully developed the inaugural paediatric palliative care program in Ireland.
- Demonstrated a structured approach to curriculum design for a unique healthcare specialty.
Conclusions:
- The development of specialized paediatric palliative care education is crucial for addressing complex patient and family needs.
- Peyton's curricular cycle provides a robust model for planning and implementing such unique educational initiatives.
Abstract:
Paediatric palliative care has increasingly been recognised as a specialist area of practice. Essentially it is a holistic approach to care that embraces a range of elements concerned with not only the management of symptoms but also the psychosocial and spiritual needs of the child and family through death and bereavement. Children requiring palliative care represent a diverse patient group whose illness trajectories are often prolonged and unpredictable and this creates much stress for children themselves, their families and professionals who support them (Price and McFarlane, 2006). Such an approach to care is unique and the development of paediatric palliative care educational programmes requires careful and thorough planning, with the specific needs of the child and family being pivotal to the process. This article recounts the development of the first paediatric palliative care programme in Ireland using the curricular cycle described by Peyton (1998).
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