Caring Connection: Internet resources for family caregivers of children with cancer
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Deborah Lewis1, Jason Cooper, Sriya Gunawardena
1Slippery Rock University, 118 Strain Behavioral Sciences Building, Slippery Rock, PA 16057, USA. deb.lewis@sru.edu
Abstract:
This poster will describe the evaluation of a family-focused web-based resource, the "Caring Connection", designed to provide individualized clinical information, patient-centric information resources, and access to online family-to-provider and family-to-family communication for caregivers of children with cancer. Data from structured interviews with family caregivers describe their Internet use and information needs. The interview data further provide information regarding the information and communication needs of family caregivers of children with cancer. Website server logs provide data to corroborate the interview findings.
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