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Related Experiment Videos

Financing newborn screening: sources, issues, and future considerations.

Bradford L Therrell1, Donna Williams, Kay Johnson

  • 1Department of Pediatrics, University of Texas Health Science Center at San Antonio, USA.

Journal of Public Health Management and Practice : JPHMP
|February 15, 2007
PubMed
Summary
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Newborn screening (NBS) programs increasingly rely on fees, with 90% now charging parents or third parties. This study surveyed all 51 US programs, highlighting complexities in NBS financing and billing.

Area of Science:

  • Public Health Financing
  • Healthcare Administration
  • Pediatric Screening Programs

Background:

  • Newborn screening (NBS) programs are essential public health services with evolving financial structures.
  • Over 45 years, NBS financing has grown complex, with increasing reliance on program-specific fees.
  • Previous surveys indicated a growing dependence on NBS fees, necessitating updated comprehensive analysis.

Purpose of the Study:

  • To comprehensively assess the current financial landscape of all 51 U.S. newborn screening programs.
  • To identify trends in NBS funding sources, including fees, grants, and government reimbursements.
  • To explore challenges in NBS billing and suggest potential solutions for improved financial equity.

Main Methods:

  • Surveyed all 51 U.S. newborn screening programs, collecting updated financial data.

Related Experiment Videos

  • Analyzed fee structures, funding sources (fees, Title V block grant, state revenue, Medicaid), and budget changes.
  • Gathered qualitative feedback on billing complexities and potential standardization needs.

    • Main Results:

    • Ninety percent of NBS programs utilize fees paid by parents or third-party payers.
    • Funding sources include the Title V block grant (61%), state general revenue (33%), and Medicaid reimbursement (24%).
    • A majority of programs (63%) reported budget increases (2002-2005), primarily driven by fee revenue (72%).

    Conclusions:

    • Newborn screening programs exhibit significant financial diversity with substantial reliance on program fees.
    • Lack of standardized coding and varying Medicaid interpretations create billing complexities and potential inequities.
    • Further national-level clarification and standardization could enhance NBS program financial sustainability and equity.