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Perceived adherence to prescribed treatment in juvenile idiopathic arthritis over a one-year period

Debbie Ehrmann Feldman1, Mirella de Civita, Patricia L Dobkin

  • 1Université de Montréal, Montreal Children's Hospital, McGill University Health Centre, McGill University, Montreal, Quebec, Canada. debbie.feldman@umontreal.ca

Insights

Parental belief in treatment effectiveness is key for adherence in juvenile idiopathic arthritis (JIA). Higher perceived helpfulness of medications and exercises correlated with better adherence in children with JIA.

Area of Science:

  • Pediatric Rheumatology
  • Adolescent Medicine
  • Child Health Outcomes

Background:

  • Juvenile idiopathic arthritis (JIA) requires long-term treatment adherence for optimal management.
  • Understanding factors influencing adherence is crucial for improving patient outcomes.
  • Parental perception plays a significant role in a child's treatment adherence.

Purpose of the Study:

  • To assess perceived treatment adherence (medications and exercises) in JIA patients over one year.
  • To identify factors associated with parental perceived adherence to JIA treatment.

Main Methods:

  • Surveyed parents of 175 JIA patients across two Canadian children's hospitals.
  • Utilized the Parent Adherence Report Questionnaire (PARQ) with a 100-mm visual analog scale (VAS) every 3 months for 12 months.
  • Assessed parental coping, distress, child function, disease severity, and perceived treatment helpfulness.

Main Results:

  • Perceived medication adherence remained high (86-92%) throughout the year.
  • Perceived exercise adherence was lower (54-64%) but stable.
  • Higher adherence linked to perceived treatment helpfulness, lower disease severity, younger child age, and child involvement in treatment.

Conclusions:

  • Parental belief in the helpfulness of treatment is a significant factor in perceived adherence for JIA.
  • Targeting parental perceptions may enhance treatment adherence in pediatric arthritis management.
Abstract

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