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Published on: June 6, 2020

Participatory research in pediatric palliative care: benefits and challenges

Suzanne Mongeau1, Manon Champagne, Stephen Liben

  • 1Université du Québec à Montréal, Canada.

Journal of Palliative Care
|April 21, 2007
PubMed

Insights

Participatory research in pediatric palliative care empowers families and professionals. This collaborative method enhances research relevance and impact by involving all stakeholders in the process.

Area of Science:

  • Pediatric Palliative Care
  • Community-Based Participatory Research

Background:

  • In-home respite programs are crucial for families of children requiring pediatric palliative care.
  • Effective evaluation of these programs requires methods that engage all stakeholders.

Purpose of the Study:

  • To evaluate two in-home respite programs using a participatory research approach.
  • To describe the benefits and challenges of participatory research in pediatric palliative care.

Main Methods:

  • Employed a participatory research methodology involving all concerned parties.
  • Focused on two distinct projects evaluating in-home respite care for children and their families.

Main Results:

  • Participatory research actively engaged organizations, professionals, volunteers, and family members.
  • Participants reported benefits including voicing concerns and feeling empowered.

Conclusions:

  • A participatory research method is beneficial for all stakeholders in pediatric palliative care.
  • This approach enhances the social relevancy and impact of research in this field.

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