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Updated: Jul 15, 2026
11:50
Clinical Practice Protocol of Creative Music Therapy for Preterm Infants and Their Parents in the Neonatal Intensive Care Unit
Published on: January 7, 2020
[Compassionate care for terminally ill term and preterm infants]
1Neonatologie, Klinik und Poliklinik für Frauenheilkunde und Geburtshilfe, Standort Grosshadern, Ludwig-Maximilians-Universität, München, Germany. Andreas.Schulze@med.uni-muenchen.de
Zeitschrift Fur Geburtshilfe Und Neonatologie
|May 9, 2007
Summary
Family involvement in end-of-life care decisions for terminally ill infants does not worsen parental grief. Prioritizing pain management and individualized contact supports families through perinatal loss.
Area of Science:
- Pediatric critical care medicine
- Neonatal palliative care
- Bereavement research
Context:
- Parental involvement in intensive care decisions for terminally ill infants.
- Addressing grief and guilt in parents experiencing perinatal loss.
- Understanding the unique needs of families during infant end-of-life care.
Purpose:
- To evaluate the impact of family involvement on parental grief responses.
- To identify key components of effective compassionate care plans for terminally ill infants.
- To explore parental needs regarding contact with dying infants and the impact of perinatal loss.
Summary:
- Family participation in withholding/withdrawing intensive care and care planning for terminally ill infants does not exacerbate parental grief, guilt, or pathological grief.
- Effective pain and symptom management is crucial, alongside individualized parental choices for contact with their dying infant.
- Perinatal loss, including twin loss, presents significant stress; sibling needs and post-death support, including information on grief variations and risks, are essential.
Impact:
- Informing clinical practice to support grieving families through compassionate, individualized end-of-life care.
- Highlighting the importance of proactive bereavement support and education for parents experiencing infant loss.
- Emphasizing the need to acknowledge and address the specific needs of all family members, including siblings, during perinatal loss.
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