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The Multiple Sclerosis Performance Test (MSPT): An iPad-Based Disability Assessment Tool

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Patient information and coping styles in multiple sclerosis.

K Lode¹, J P Larsen, E Bru

¹The Norwegian Centre for Movement Disorders, Stavanger University Hospital, Stavanger, Norway. kli@sir.no

Multiple Sclerosis (Houndmills, Basingstoke, England)

|July 7, 2007

Summary

Patients diagnosed with multiple sclerosis (MS) who received better quality information adapted better to their condition. Improving early patient education may enhance coping strategies for living with MS.

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Area of Science:

Neurology
Psychology
Health Communication

Background:

Multiple sclerosis (MS) is a chronic, incurable neurological disease requiring long-term patient adaptation.
Effective coping behaviors are crucial for patients managing the challenges of living with MS.
The impact of disease information quality on patient coping remains an important area of study.

Purpose of the Study:

To investigate the relationship between the perceived quality of disease information and coping styles in MS patients.
To determine if better information quality correlates with more adaptive coping mechanisms in stressful MS-related situations.

Main Methods:

A cohort of 93 newly diagnosed multiple sclerosis (MS) patients participated.
Participants completed questionnaires assessing perceived information quality and coping styles (COPE scale).
Data from 86 patients were analyzed to explore correlations.

Main Results:

Over 43% of patients were dissatisfied with information received at diagnosis.
Positive reinterpretation, planning, and restraint coping were common; denial was infrequent.
Patients satisfied with information used avoidance coping less and engaged more in planning and information seeking.

Conclusions:

The quality of information provided early in the MS diagnosis significantly influences patient coping.
Optimizing the early information process can foster adaptive coping styles for improved long-term adjustment to MS.
Enhanced patient education is a key strategy for supporting individuals living with multiple sclerosis.