Self-management programs for adults with low vision: needs and challenges

Area of Science:

• Ophthalmology
• Rehabilitation Science
• Public Health

Background:

• Individuals with low vision face significant challenges impacting daily life, social interactions, and emotional well-being.
• Existing support systems may not adequately address the multifaceted needs arising from vision impairment.
• Self-management (SM) programs offer a potential avenue for empowering individuals with low vision.

Purpose of the Study:

• To identify the specific needs of individuals with low vision.
• To inform the development of effective low vision self-management (SM) programs.
• To determine barriers that may hinder participation in such programs.

Main Methods:

• Conducted semi-structured interviews with 48 participants diagnosed with low vision.
• Utilized qualitative analysis to identify recurring themes and patterns in participant experiences.
• Explored functional, social, and emotional consequences of vision loss.

Main Results:

• Participants reported difficulties in functional activities, social engagement, and emotional well-being due to vision loss.
• Less than half of the participants expressed interest in attending a SM program.
• Identified barriers included practical concerns, perceived lack of need, and negative program perceptions.

Conclusions:

• Self-management programs hold promise for addressing low vision challenges if participation barriers are overcome.
• Effective programs should integrate vision-specific strategies, problem-solving skills, and emotional coping mechanisms.
• Program delivery and promotion strategies must be optimized to improve accessibility and encourage uptake across diverse low vision populations.