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Bowel and bladder control of children with myelomeningocele: a Nordic study

H R Lie1, J Lagergren, F Rasmussen

  • 1Department of Pediatrics, University Hospital, Lund, Sweden.

Insights

Urinary and bowel control in children with myelomeningocele is challenging. Clean intermittent catheterisation (CIC) improves continence but increases antibiotic use, highlighting management complexities.

Area of Science:

  • Pediatric Urology
  • Neuroscience
  • Rehabilitation Medicine

Background:

  • Myelomeningocele frequently causes neurogenic bladder and bowel dysfunction.
  • Urinary and bowel control significantly impacts quality of life in affected children.

Purpose of the Study:

  • To evaluate urinary and bowel control in children with myelomeningocele.
  • To assess the effectiveness and challenges of different management strategies.
  • To define social urinary continence.

Main Methods:

  • Retrospective review of medical records for 527 children (4-18 years).
  • Parental questionnaires assessing continence and stress.
  • Analysis of bladder management techniques including clean intermittent catheterisation (CIC) and manual expression.

Main Results:

  • 433/527 children had neuropathic bladders; 31% used manual expression, 40% used CIC.
  • CIC use correlated with better continence and less assistance but higher antibiotic rates.
  • 412/527 children had disturbed bowel control; 212 used manual evacuation, often needing assistance.
  • Urinary and faecal incontinence were reported as highly stressful by parents.

Conclusions:

  • Social urinary continence is proposed as maintaining dryness for ≥3 hours.
  • Effective bladder and bowel management is crucial for improving quality of life in children with myelomeningocele.
  • Optimizing CIC protocols may reduce antibiotic-associated complications.

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