Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

[The German Network for Systemic Scleroderma].

P Moinzadeh1, A Fehr, B Damm

  • 1Klinik und Poliklinik für Dermatologie und Venerologie, Klinikum der Universität zu Köln, Kerpener Strasse 62, 50924, Köln, Germany.

Der Hautarzt; Zeitschrift Fur Dermatologie, Venerologie, Und Verwandte Gebiete
|September 12, 2007
PubMed
Summary
This summary is machine-generated.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Preventive effects of early immunosuppressive treatment on the development of interstitial lung disease in systemic sclerosis.

Rheumatology (Oxford, England)·2024
Same author

Consensus statement on the diagnosis and treatment of sclerosing diseases of the skin, Part 1: Localized scleroderma, systemic sclerosis and overlap syndromes.

Journal of the European Academy of Dermatology and Venereology : JEADV·2024
Same author

[Systemic sclerosis].

Dermatologie (Heidelberg, Germany)·2024
Same author

Search for New Phenomena in Final States with Two Leptons and One or No b-Tagged Jets at sqrt[s]=13  TeV Using the ATLAS Detector.

Physical review letters·2021
Same author

Search for Displaced Leptons in sqrt[s]=13  TeV pp Collisions with the ATLAS Detector.

Physical review letters·2021
Same author

[How I treat calcinosis cutis in the context of collagenosis…].

Zeitschrift fur Rheumatologie·2021
Same journal

Der Hautarzt; Zeitschrift fur Dermatologie, Venerologie, und verwandte Gebiete·2022
Same journal

[Viral infections of the skin].

Der Hautarzt; Zeitschrift fur Dermatologie, Venerologie, und verwandte Gebiete·2022
Same journal

[Viral exanthems in children].

Der Hautarzt; Zeitschrift fur Dermatologie, Venerologie, und verwandte Gebiete·2022
Same journal

[Erratum to: Digital health applications and data protection].

Der Hautarzt; Zeitschrift fur Dermatologie, Venerologie, und verwandte Gebiete·2022
Same journal

[Virus-induced exanthems in returning travellers].

Der Hautarzt; Zeitschrift fur Dermatologie, Venerologie, und verwandte Gebiete·2022
Same journal

[Venous ulcus cruris-Surgical treatment].

Der Hautarzt; Zeitschrift fur Dermatologie, Venerologie, und verwandte Gebiete·2022
See all related articles

The German Network for Systemic Scleroderma registry collects data from over 1800 patients to improve diagnosis and treatment. This initiative aims to develop standardized recommendations for managing this rare, multisystem autoimmune disease.

Area of Science:

  • Rheumatology and Dermatology
  • Multisystemic Autoimmune Diseases

Context:

  • Systemic scleroderma (SSc) is a rare, heterogeneous autoimmune disease impacting multiple organ systems.
  • Effective management necessitates interdisciplinary collaboration among specialists.
  • The German Network for Systemic Scleroderma unites over 40 centers.

Purpose:

  • To establish a comprehensive registry for Systemic Scleroderma (SSc) patient data.
  • To facilitate the analysis of a growing dataset of over 1800 SSc patients.
  • To inform the development of standardized diagnostic and therapeutic guidelines for SSc.

Summary:

  • The German Network for Systemic Scleroderma has established a registry with data from over 1800 patients.
  • This registry includes input from dermatologists, rheumatologists, pulmonologists, and nephrologists.

Related Experiment Videos

  • Ongoing data analysis will guide the creation of standardized SSc care recommendations.

    • Impact:

    • Potential to significantly improve the standardized diagnosis and treatment of Systemic Scleroderma.
    • Establishment of evidence-based recommendations for a rare and complex disease.
    • Enhanced interdisciplinary patient care pathways for Systemic Scleroderma.