Rates of early intervention services in very preterm children with developmental disabilities at age 2 years

Gehan Roberts1, Kelly Howard, Alicia J Spittle

  • 1Victorian Infant Brain Study Group, Murdoch Children's Research Institute, University of Melbourne, Melbourne, Victoria, Australia. gehan.roberts@rch.org.au

Insights

Very preterm infants with disabilities often do not receive timely early intervention (EI) services. Children with higher social risk are less likely to access EI, highlighting gaps in care for vulnerable populations.

Area of Science:

  • Neonatal care and developmental pediatrics
  • Public health and healthcare disparities

Background:

  • Preterm birth rates are rising, leading to increased neurodevelopmental disabilities in children.
  • Early intervention (EI) is crucial for managing developmental delays, but access remains a challenge.

Purpose of the Study:

  • To investigate the association between disability levels at age 2 years and EI service utilization in very preterm infants.
  • To examine the impact of social risk factors on EI service access among this vulnerable cohort.

Main Methods:

  • A cohort study of 236 very preterm infants (gestational age < 30 weeks or birthweight < 1250 g) recruited at birth.
  • Children underwent comprehensive assessments at 2 years; EI and social risk data were collected via parental questionnaires.
  • Disability was categorized as none, mild, or moderate to severe.

Main Results:

  • Over 50% of very preterm children exhibited some form of disability by age 2.
  • Children with moderate to severe disabilities were more likely to receive EI services than those with mild disabilities (51.1% vs. 27.9%).
  • Higher social risk was independently associated with reduced likelihood of receiving EI services (OR 0.25; P = 0.001).

Conclusions:

  • Current follow-up, referral, and EI services inadequately support very preterm children, particularly those with combined biological and social risks.
  • There is a critical need to address systemic barriers to ensure equitable access to essential developmental support for vulnerable preterm infants.
Abstract

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