Results of the premature birth national need-gap study

S D Berns1, M D Boyle, B Popper

  • 11National Office, March of Dimes Foundation, White Plains, NY, USA. Sberns@marchofdimes.com

Insights

Most parents are satisfied with neonatal intensive care unit (NICU) care, but a significant minority desire more information and interaction. Improving family-centered care in NICUs can enhance outcomes for premature infants.

Area of Science:

  • Neonatal care
  • Pediatric nursing
  • Family-centered care

Background:

  • Family-centered care is a standard in neonatal intensive care units (NICUs).
  • Parental involvement is crucial for premature infants' well-being.
  • NICUs aim to integrate families into the care process.

Purpose of the Study:

  • To evaluate parents' experiences and involvement in premature infants' care within NICUs.
  • To identify successes and areas for improvement in family-centered care practices.
  • To assess parental satisfaction with care in the NICU setting.

Main Methods:

  • Survey of 502 parents with infants born prematurely (gestational age ≤36 weeks).
  • Infants were either currently in or had previously experienced NICU care (age ≤30 months).
  • Data collected on parental experiences with access, attention, and information.

Main Results:

  • Majority of parents reported reasonable satisfaction with physician and nurse interactions.
  • Approximately 25% of parents were only moderately satisfied.
  • Nearly 10% of parents expressed dissatisfaction with their NICU experience.

Conclusions:

  • While progress in family-centered care exists, further improvements are needed.
  • Enhancing information provision and interaction opportunities for families is recommended.
  • Improved family engagement in NICUs may lead to better infant outcomes.
Abstract

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