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Related Experiment Videos

Participation after stroke: comparing proxies' and patients' perceptions.

Valérie Poulin1, Johanne Desrosiers

  • 1Research Centre on Aging, University Institute of Geriatrics of Sherbrooke, Sherbrooke, Québec, Canada. Valerie.Poulin2@USherbrooke.ca

Journal of Rehabilitation Medicine
|January 8, 2008
PubMed
Summary

Proxy and patient agreement on participation after stroke is generally good, supporting proxy use when patients cannot self-report. Motor disability severity influences disagreement.

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Cognitive functioning following mild stroke in adults aged 18 to 64 years: association with participation.

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Area of Science:

  • Rehabilitation Medicine
  • Neuroscience
  • Health Outcomes Research

Background:

  • Participation is crucial for quality of life after stroke.
  • Proxy-reported outcomes are often used when patients cannot self-report due to stroke-related impairments.
  • Understanding agreement between patient and proxy reports is essential for accurate outcome assessment.

Purpose of the Study:

  • To assess agreement between stroke survivors and their proxies on participation using the Assessment of Life Habits questionnaire (LIFE-H 3.1).
  • To identify patient and proxy characteristics associated with disagreement in participation reporting.

Main Methods:

  • Cross-sectional study involving 40 community-dwelling people with stroke and their proxies (n=80).
  • Face-to-face interviews using the LIFE-H 3.1 questionnaire to measure participation in daily activities and social roles.

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  • Collection of sociodemographic and clinical data, including motor impairment and cognitive function.

    • Main Results:

    • Moderate to excellent agreement was observed for overall participation (ICC: 0.82), daily activities (ICC: 0.87), and social roles (ICC: 0.73).
    • Proxies reported more participation limitations than patients, but differences were not clinically significant.
    • Severity of motor disability was the strongest predictor of disagreement between patient and proxy responses.

    Conclusions:

    • Proxy responses demonstrate acceptable agreement with patient self-reports, validating their use for individuals unable to self-report participation.
    • Consideration of factors like motor disability severity is important when interpreting proxy-reported participation data.