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Children's knowledge and degree of participation in decision making when undergoing a clinical diagnostic procedure
Ingrid Runeson1, Eva Mårtenson, Karin Enskär
1Department of Health and Behavioral Sciences, University of Kalmar, Kalmar, Sweden.
Insights
Children undergoing diagnostic procedures often lack sufficient knowledge and participation in their care. Further research is needed to optimize preparation and address factors influencing a child
Area of Science:
- Pediatric Healthcare
- Child Psychology
- Medical Education
Background:
- Children undergoing diagnostic procedures require tailored preparation.
- Understanding children's knowledge and participation is crucial for effective care.
Purpose of the Study:
- To investigate children's knowledge of diagnostic procedures.
- To assess children's participation in healthcare discussions and decision-making.
- To compare children's and parents' experiences of anxiety and fear.
Main Methods:
- Interviews with 23 children (6-11 years) undergoing diagnostic procedures.
- Parental questionnaires assessing information provided to the child.
- Grading children's knowledge and summarizing participation levels.
Main Results:
- Children were generally not well-informed about their procedures.
- Levels of participation in discussions and decision-making varied significantly.
- Children and parents reported differing experiences of pre-hospital anxiety.
Conclusions:
- Current preparation methods for pediatric diagnostic procedures are insufficient.
- Enhanced strategies are needed to improve children's understanding and involvement.
- Factors like trust and environment significantly impact a child's hospital experience.
Abstract:
Twenty-three children, (6-11 years, 9 boys and 14 girls), admitted to a pediatric day care department for a planned diagnostic procedure were interviewed with the aim of investigating their level of knowledge regarding a current diagnostic procedure, and the level of participation in discussions and decision making relating to their hospitalization. While the children were being interviewed, their attendant parent completed a questionnaire. The children's level of knowledge was documented and graded. The children's statements and their parents' evaluation of the information given to the child were sorted into groups and compared. The children's descriptions of their participation in discussions and decision-making were assessed and summarized. Finally, the children's and their parents' experiences of the children's anxiety and fear before the hospital visit were compared. The children were undergoing different kinds of diagnostic procedures and they had received information from different people. They were prepared for their admission in different ways, and had participated in discussions and decisions to various degrees. Despite this preparation, it would be safe to state that the participants as a group were not very well informed nor did they participate fully. More knowledge is needed regarding how to prepare each child prior to admission, before, during, and after the hospital visit and which additional factors, e.g., trust and a familiar environment, have influence on the child's experience.
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