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Empowering young people with long-term illness
Stephen Abbott1, Linda Cairns, Helen Davies
1City University, London.
Paediatric Nursing
|June 13, 2008
Summary
A new program for children with long-term conditions, based on the Expert Patient Programme, improved social skills and confidence. Preliminary data suggests reduced healthcare utilization, empowering participants to manage their health.
Area of Science:
- Pediatric Health
- Chronic Condition Management
- Health Services Research
Background:
- National Service Framework recommendations for children with long-term conditions.
- Adaptation of the Expert Patient Programme for pediatric populations.
- Targeting children with high healthcare utilization.
Purpose of the Study:
- To evaluate a newly developed program for children and young people with long-term conditions.
- To assess the program's impact on participants' self-management, confidence, and healthcare use.
- To provide support for children managing chronic illnesses.
Main Methods:
- Development of two age-specific programs (5-11 and 12-18 years).
- Recruitment of children with high primary and/or hospital care usage.
- Evaluation using questionnaires to gather feedback.
Main Results:
- Participants reported enhanced social contact and confidence.
- Improvements noted in family communication and relationship dynamics.
- Acquisition of new skills for managing long-term conditions.
- Preliminary data indicates a potential reduction in health service use.
Conclusions:
- The program appears successful in helping young participants acknowledge their illness.
- Participants reported feeling more in control of their lives and health.
- Findings suggest the program's effectiveness in empowering children with chronic conditions, though further research is warranted.
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