Heart transplantation experiences: a phenomenological approach

Area of Science:

• Cardiology
• Transplantation Medicine
• Patient Experience Research

Background:

• Heart transplantation offers survival and improved quality of life for heart failure patients.
• Patient engagement with healthcare teams post-transplant is linked to better quality of life.
• Poor patient-provider relationships can negatively impact adherence to post-operative care.

Purpose of the Study:

• To explore and understand the lived experiences of heart transplant recipients.
• To gather insights into the meaning of heart transplantation from the patient's perspective.

Main Methods:

• A phenomenological approach was employed.
• Individual interviews were conducted with 26 heart transplant recipients.
• Data analysis involved phenomenological reduction, analysis, and interpretation.

Main Results:

• Three emergent themes: time lived, the role of donors/family/caregivers, and reflections on the experience.
• Recipients face lifelong immunosuppression with side effects, but universally report improved quality of life.
• Essential support from healthcare providers and social networks is vital for adaptation and ongoing care.

Conclusions:

• Heart transplantation is a unique, individual experience requiring adaptation to organ changes and medical regimens.
• Patients must accept significant life adjustments, including medication and dietary restrictions.
• Empowering patients to express their experiences and involving them as active participants is key to effective care.