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Published on: April 7, 2023
Paediatric heart care in India
1Department of Pediatric Cardiology, Amrita Institute of Medical Sciences, Kochi, Kerala, India. rkrishnakumar@aims.amrita.edu
Insights
India faces a significant burden of paediatric heart disease, particularly congenital heart disease (CHD). Insufficient specialized care and high costs hinder effective management for affected children.
Area of Science:
- Paediatric Cardiology
- Public Health
- Cardiovascular Epidemiology
Background:
- Systematic efforts to define the burden of paediatric heart disease in India are limited.
- Estimates suggest a substantial burden of congenital heart disease (CHD) at birth, with other heart conditions also being significant.
- The availability of paediatric cardiac care programs and trained professionals is inadequate and unevenly distributed across India.
Purpose of the Study:
- To highlight the significant burden of paediatric heart disease in India.
- To identify the challenges in providing adequate paediatric cardiac care.
- To emphasize the need for developing the specialty of paediatric cardiology in India.
Main Methods:
- Review of existing literature and estimates on paediatric heart disease prevalence.
- Analysis of the current infrastructure and human resources for paediatric cardiac care in India.
- Assessment of socioeconomic factors impacting access to care.
Main Results:
- A massive burden of congenital heart disease (CHD) is estimated, with substantial numbers of other paediatric heart conditions.
- Paediatric heart programs and trained specialists are insufficient and concentrated in economically developed regions.
- The cost of care is prohibitive for most families, requiring significant resources and technology.
Conclusions:
- There is an urgent need to intensify efforts to develop paediatric cardiology services across India.
- Key challenges include obtaining accurate disease burden data, establishing quality institutions, training professionals, and developing cost-effective strategies.
- Improving awareness and access to diagnosis and management of paediatric heart diseases is crucial.
Abstract:
There have been few systematic efforts to define the burden of paediatric heart disease in India. Estimates based on published studies on congenital heart disease (CHD) at birth suggest a massive CHD burden. Absolute numbers of children with other heart diseases are also likely to be substantial. Given the enormity of the problem the number of paediatric heart programmes and specially trained paediatric cardiologists and paediatric cardiac surgeons are woefully inadequate. They are largely clustered in those parts of India that are experiencing improving economy and human development. For the average family the cost of care of a child with heart disease is prohibitive because care of children with heart disease often requires considerable human and material resources, together with sophisticated technology. While paediatric cardiology is only now being recognised in India as a major specialty, there is a need to intensify efforts to develop the specialty especially in those parts of India where there are very few centres. The present challenges are many and they include obtaining representative data on disease burden, establishing quality institutions with comprehensive paediatric cardiac programme training a cadre of professionals for paediatric heart care, developing cost-effective management strategies and improving awareness on diagnosis and management of paediatric heart diseases.
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