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Published on: March 14, 2017
Factors influencing independence in adolescents with sickle cell disease
1New York University College of Nursing, New York, NY, USA. jan7@nyu.edu
Problem:
Factors that predict successful transition from pediatric to adult care for adolescents with sickle cell disease are not fully understood, making transfer decisions difficult.
Methods:
Seventy-four adolescents (14-21 years) participated in this descriptive correlational study to investigate the relationships of age, gender, knowledge about sickle cell disease, disease severity, and family relationships to independence.
Findings:
Knowledge, severity, and family relationships explained only 25% of the variance for independence in the final model; family relationships were inversely correlated.
Conclusions:
Factors exerting stronger influences on independence remain unknown. Cultural factors may be important among this predominantly African American population.
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