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Establishment of a Clinic-based Biorepository
Published on: May 29, 2017
Irish National Joint Registry: a concept
K O Oduwole1, M B Codd, F Byrne
1Department of Clinical Research, Catherine McCauley Research Centre, Mater Misericordiae University Hospital, Dublin 7, Ireland. odukayolajide@yahoo.com
Most Irish orthopaedic surgeons support a national joint register, but privacy and liability concerns need addressing. Compulsory participation is favored, with legislation potentially required for data protection.
Area of Science:
- Orthopaedic Surgery
- Health Informatics
- Public Health Policy
Background:
- National joint registers are crucial for monitoring joint replacement outcomes and improving patient care.
- Despite established benefits, Ireland has not yet implemented a national joint registry.
- Understanding surgeon perspectives is key to addressing barriers to registry establishment.
Purpose of the Study:
- To assess consultant orthopaedic surgeons' and specialist registrars' opinions on establishing an Irish National Joint Register.
- To identify potential reasons hindering the implementation of a national joint registry in Ireland.
Main Methods:
- A questionnaire study was conducted among orthopaedic surgeons and specialist registrars in Ireland.
- A 69% first response rate was achieved, gathering data on opinions and concerns.
Main Results:
- Overwhelming support exists for establishing a national joint registry, with 97% believing it is time to proceed.
- 81% advocate for compulsory participation by surgeons and hospitals.
- Significant concerns were raised regarding patient privacy and liability issues, with 58% worried about public access to reports and potential medico-legal implications.
Conclusions:
- There is strong consensus among Irish orthopaedic professionals to establish a national joint registry.
- Addressing privacy and liability concerns through appropriate legislation is essential for successful implementation.
- Legislation is recommended to safeguard the integrity of data within a national joint replacement registry.
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