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Experiencing breast cancer in managed care.
Jennifer Wenzel1, Richard H Steeves
1Johns Hopkins University, Baltimore, Maryland, USA.
Qualitative Health Research
|October 14, 2008
Summary
Women in managed care face significant burdens managing breast cancer treatment. They often feel solely responsible for navigating complex demands between healthcare providers and managed care organizations (MCOs).
Area of Science:
- Oncology
- Healthcare Management
- Qualitative Research
Background:
- Managed care organizations (MCOs) aim to standardize cancer care and reduce costs.
- Cancer care presents unique challenges due to its complexity and high cost.
- Patient experiences within managed care systems require further investigation.
Purpose of the Study:
- To explore the lived experiences of women with breast cancer enrolled in MCOs.
- To understand the challenges faced by patients in managing cancer treatment within managed care.
Main Methods:
- Hermeneutic phenomenological approach.
- Semistructured interviews with 14 women diagnosed with breast cancer.
- Analysis of patient experiences in navigating MCOs and cancer care.
Main Results:
- Two primary themes emerged: 'managed care tasks' and 'managing or mediating between the MCO and the cancer'.
- Participants reported an increased burden, feeling solely responsible for mediating between providers and their MCO.
- Difficulties arose from managing disconnected demands of cancer and the MCO, even in less restrictive plans.
Conclusions:
- Women with breast cancer in managed care face a dual burden of managing their illness and the healthcare system.
- Findings highlight a significant patient burden in mediating between MCOs and cancer care providers.
- Recommendations for policy and practice changes are suggested to alleviate patient burden.
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