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Related Concept Videos

Ethics in Research01:56

Ethics in Research

Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
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Community consultation methods in a study using exception to informed consent.

Maria Nelson1, Terri A Schmidt, Nicole M DeIorio

  • 1Oregon Health & Science University, Portland, Oregon 97239, USA. ochsnerm@ohsu.edu

Prehospital Emergency Care
|October 17, 2008
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Summary

Community consultation methods significantly impact public opinion on research. Random-digit dialing phone surveys, supplemented by discussions at existing events, appear most effective for gathering diverse community input.

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Area of Science:

  • Public Health
  • Clinical Trials
  • Community Engagement

Background:

  • Effective community consultation is crucial for ethical research, yet optimal methods remain unclear.
  • Varying approaches to community engagement can influence public perception and willingness to participate in studies.

Purpose of the Study:

  • To evaluate differences in community opinion elicited by various consultation methods.
  • To identify the most effective strategies for engaging diverse populations in research discussions.

Main Methods:

  • A cross-sectional, standardized survey was administered through multiple channels: random-digit dialing phone surveys (two sets), paper surveys at community meetings (open forums and existing events), and web-based surveys.
  • The study was conducted as part of the community consultation for the Resuscitation Outcomes Consortium (ROC) hypertonic saline trial.

Main Results:

  • A total of 361 usable surveys were collected, with phone surveys yielding the most responses.
  • Community meeting participants showed higher willingness for experimental treatment compared to phone or web respondents.
  • Web-based surveys provided the least feedback and attracted higher-income responders, while community meetings had the highest minority representation.

Conclusions:

  • Consultation methods significantly influence research opinions, with phone surveys eliciting the most objections and community meetings showing greater acceptance of experimental treatments.
  • Open forums were poorly attended, and attendees were less likely to object to research without informed consent.
  • Random-digit dialing phone surveys, combined with targeted discussions at existing events, are suggested as an efficient method for community consultation, particularly for reaching special populations.