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The impact of paediatric tracheostomy on both patient and parent

C Hopkins1, S Whetstone, T Foster

  • 1Evelina Children's Hosptial, London SE1 7EH, UK. clairehopkins@yahoo.com

International Journal of Pediatric Otorhinolaryngology
|November 21, 2008
PubMed

Insights

Pediatric tracheostomy significantly impacts families, affecting quality of life and requiring better community support. This study highlights the need for improved pre-operative preparation and home nursing for tracheostomized children.

Area of Science:

  • Pediatric Otolaryngology
  • Child Health Services Research
  • Quality of Life Studies

Background:

  • Pediatric tracheostomy is a critical intervention for airway management in children.
  • The procedure can profoundly affect the lives of patients and their families.
  • Understanding these impacts is crucial for comprehensive care.

Purpose of the Study:

  • To evaluate the effects of pediatric tracheostomy on patients and their families.
  • To identify specific areas of quality of life impacted by the procedure.
  • To assess the adequacy of current support systems for these families.

Main Methods:

  • Structured interviews were conducted with caregivers of tracheostomized children.
  • The Pediatric Tracheotomy Health Status Instrument was utilized.
  • Data was collected during in-patient admissions for airway endoscopy over a 6-month period.

Main Results:

  • 26 caregivers completed questionnaires; 27% of children were successfully decannulated.
  • Caregivers reported adverse effects on sleep, relationships, social life, and work.
  • Families had below-average incomes, and a shortfall in home nursing provision was noted.

Conclusions:

  • Pediatric tracheostomy has extensive effects on patient and caregiver quality of life.
  • There is a need for enhanced pre-operative preparation and community support.
  • Improved home nursing and family support are essential for optimal outcomes.
Abstract

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