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Care for Amish and Mennonite children with cystic fibrosis: a case series

Jonathan F Henderson1, Ran D Anbar

  • 1Department of Pediatrics, State University of New York Upstate Medical University, Syracuse, NY, USA. hendersonj@upstate.edu

BMC Pediatrics
|January 17, 2009
PubMed

Insights

Amish and Mennonite families are increasingly utilizing modern medical therapies for cystic fibrosis (CF), leading to improved health outcomes for their children. This acceptance of preventive and acute treatments marks a positive shift in managing CF within these communities.

Area of Science:

  • Pediatric Pulmonology
  • Genetics and Rare Diseases
  • Public Health

Background:

  • Previous literature indicated resistance to modern medical therapies among Amish and Mennonite populations.
  • This reluctance posed a significant barrier to providing comprehensive care, particularly for chronic conditions like cystic fibrosis.

Observation:

  • This study examined 12 pediatric patients with cystic fibrosis from Amish and Mennonite communities treated at a dedicated center.
  • Case reports were utilized to illustrate treatment experiences and outcomes.

Findings:

  • Families accepted preventive therapies, acute interventions (including home IV antibiotics), and some immunizations for children with cystic fibrosis.
  • Patient health significantly improved with the adoption of these medical interventions.
  • Some families participated in clinical research trials, demonstrating growing engagement.

Implications:

  • Modern medical therapies, when utilized by Amish and Mennonite families for cystic fibrosis, result in substantial improvements in patient outcomes.
  • Extensive patient and family health education is crucial for successful treatment adherence.
  • Addressing the financial burden of uninsured patients requires dedicated center resources and fundraising efforts.
Abstract

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